Actor portrayal of woman looking up

Actor portrayal of woman looking up

Not a real patient

You Are Not Alone

What to expect after a diagnosis of acromegaly

If you've been recently diagnosed with acromegaly, you likely have many complex feelings and questions. To better understand this rare disease and how to best manage it, please continue reading and join Together With Acromegaly for additional education and support.

Despite it being a rare disease, studies have shown that the prevalence of acromegaly is now about 4 times higher than previously thought.

Acromegaly by the Numbers

In the United States:

Infographic of a pyramid of people representing the fact that Acromegaly occurs in about 25,000 Americans
Acromegaly occurs in about 25,000 people
Map of the US with the letters "3k", representing the approximately 3,000 new cases of Acromegaly per year in America
Approximately 3000 new cases per year
Circular chart with "60%", representing the fact that the prevalence of Acromegaly has increased by about 60% since the 1970s
Prevalence has increased by about 60% since the 1970s
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A delayed diagnosis 5-10 years is normal

Since Symptoms may develop slowly and differently among people, acromegaly can often remain unrecognized and underdiagnosed, making it difficult to know the true frequency and number of acromegaly cases in our population. Fortunately, due to increased awareness and social media, communication and support within the acromegaly community is growing.